Advocacy Chats – Insightful Conversations on Policy Issues & Cancer Research

The Psychosocial Impact of Cancer
A cancer diagnosis affects the body and mind. Psychological symptoms like depression and anxiety can cause interruptions in care, careers, and relationships. Treating mental health is crucial to ensuring successful cancer treatment. On Wednesday, August 10 at 12 p.m. ET, join Rose Gerber, MS, director of patient advocacy & education at COA, and Lauren Chatalian, MSW, LCSW, director of advocacy and women and children’s program manager at CancerCare, to explore the practical concerns families may experience throughout the cancer care continuum and the resources CancerCare has available for those in need. Register Here

ICYMI: National Organization for Rare Disorders
A cancer diagnosis can be devastating, and patients diagnosed with rare cancers face added uncertainty. Coping with a rare disease can be scary, but there are organizations that can help. Jill Pollander, RN, MSN, vice president of patient services at the National Organization for Rare Disorders (NORD), joined Rose Gerber, MS, on Wednesday, July 13 to discuss NORD’s research into lesser known and new diseases, including cancer, and work to support patients navigating rare diagnoses. Stream it on @OncologyCOA’s YouTube channel now.

Wednesday, September 28, 2022: Community Oncology Advocacy Summit

Registration for the Community Oncology Advocacy Summit is now open! The virtual summit is an exciting day that recharges the advocacy spirit and informs attendees on the latest issues impacting cancer care in America. Industry experts and oncologists from around the country will teach attendees how to make a difference. Register today!

Understanding Advocacy in a Community Oncology Setting – Does Media Relations Still Matter?

In an age when social media posts frequently generate high-profile news with big audiences, it is easy to forget that traditional media relations – letters to the editor, op-eds, or speaking directly with reporters – remain an important way for advocates to make their voices heard. Media relations matter, because it can amplify an issue and make it seem more real to the lawmakers that advocates are trying to influence.

Before engaging with the media, advocates should prepare stories and messages that are tailored to the audience they plan to reach – for example, an advocate who is trying to sway the public may create messages that are less policy focused than an advocate trying to influence lawmakers. With messages prepared, research what types of stories are published in local media outlets and determine which outlet to reach out to.

Cancer News You Can Use

Increasing Racial Diversity in Breast Cancer Clinical Trials
Healthline 08/02
Clinical trials are key to learning about conditions like cancer and finding new treatments, but People of Color are significantly underrepresented in clinical trials — only 9% of all clinical trial participants in 2019 were Black. Things need to change on many levels to increase diversity in clinical trials; there are many barriers that make it harder for Black women to be part of clinical trials for breast cancer.

The Amount of Misinformation Online Can Lead to ‘Horribly Detrimental’ Results in Patients With Cancer, Says Expert
Cure Today 07/27
Sifting through the mounds of available information online regarding cancer can be an extremely daunting task for many patients. Couple that with the fact that many are often looking to consume news and information quickly, trustworthy sources may be hard to spot.

For Blood Cancer Patients, COVID Boosters Can Bring Some Immunity
HealthDay 07/11
In a promising development, new research has discovered that most adults with blood cancers develop at least some immunity to COVID-19 after getting booster shots. The study, published July 11 in the journal Cancer, found that less than half of patients with blood cancers developed detectable antibodies after their first dose of a COVID-19 vaccine, but 56% of those who were “non-responders” were able to produce antibodies against the disease after their first booster dose.

Community Oncology 101 – Carolina Blood and Cancer Care Associates: Celebration of Life

Carolina Blood and Cancer Care’s Associates’ Celebration of Life commemorates the hardships and joys of surviving cancer. In this video from their 2019 event, patients share their exceptional stories with their doctors, caregivers, and loved ones.

Resources for Chapters

The COVID-19 pandemic caused many to delay or cancel essential cancer screenings, which can lead to later and more complicated diagnoses. COA and CancerCare launched Time to Screen to communicate the importance of early cancer detection and make it easy for anyone to learn how to schedule an appointment at a convenient location.

View Full CPAN News Bulletin – August 2022